Sometimes my
whole karma seems to be about having conditions that are obscure, invisible,
not recognised by mainstream medicine and difficult if not impossible to treat.
I’ve never felt I fitted into the patient paradigm for any of my ills, and when
I’ve tried to squeeze myself in, it hasn’t always worked – which isn’t to say I
haven’t received some valuable advice over the years.
(It strikes
me that one day I’ll die, and presumably of something recognisable by medical
science! Now I have the image of a confused doctor trying to work out how I
kicked the bucket.)
I have
written in this blog before about my low
blood sugar and food intolerance problem, and how it doesn’t fit into any
of the definitions or recognised treatments. Actually these days that’s not
quite true but treatment remains complicated. Let me walk you through it ...
I have
functional hypoglycaemia, a condition that most doctors know little about despite
the fact that it’s a precursor to diabetes. I’m so sensitive to carbohydrates
that even brown rice makes me tired. Low blood sugar is often sheeted home to
the overgrowth of a bacteria that lives in the gut, Candida
albicans, leading to a syndrome known as ‘leaky gut’.
Mainstream
medicine has never recognised Candida overgrowth or leaky gut as legitimate
medical conditions. Another possible reason for hypoglycaemia is adrenal exhaustion,
but mainstream medicine doesn’t recognise this either.
However,
there are people who do – and they are mainly, in Melbourne at least, naturopaths.
And one of the things they sell for adrenal exhaustion is bioidentical
hormones. Some pharmacists sell them also. The one actual doctor I could find who
flogs them in Melbourne had some truly appalling comments written about her
standards of service on a doctor review website.
Apparently
it is a loophole in the law that allows the unregulated sale of these hormones,
which can actually raise levels of the hormone in the blood to dangerous heights
– this article was enough to put me off (it's eight years old but the situation appears to be unchanged). So I crossed that possible treatment
off my list.
It’s a bit
rich for mainstream medicine to complain about underqualified practitioners
flogging unregulated substances when it has shown itself thoroughly
uninterested in conditions such as LBS and glandular problems that don’t appear
on standard blood tests.
A swag of
fairly recent diets – all very distinctive and contradicting each other – do
provide some help.
The Failsafe diet is designed for those with
sensitivities to common chemicals found in foods, especially salicylates and
amines. It’s been particularly useful for conditions such as ADD and poor behaviour
and school performance in children. It recognises that additional intolerances,
such as sensitivity to gluten, fructose and lactose, may also
exist.
Unfortunately this diet refuses to believe that Candida and related
sugar sensitivity exist – so if a kid reacts to soft drink, it’s always just
the dodgy food colouring and never the sugar. I just don’t believe that’s true
for every single kid (and certainly not for me). I’ve written about this elsewhere.
Then there’s
the notorious paleo diet. Truth to tell I hadn’t been thinking about that much lately
until I watched a program that talked about how harmful high-carb diets were for
those with diabetes – even if they were supposedly ‘good carbs’. Protein is
good for low blood sugar also, and I do need to eat more – just not from cows
or sheep.
Finally
there is the FODMAPs diet. This is a mainstream diet that
has scientific legitimacy, designed for those with irritable bowel syndrome. The
premise is that some foods contain a collection of molecules (Fermentable Oligosaccharides,
Disaccharides, Monosaccharides and Polyols) – no wonder they abbreviated it to
FODMAPs – that some people can’t digest. They ferment in the bowel after being
guzzled by the resident bacteria.
it basically
boils down to fructose and fructans, galactans, lactose, and sugar alcohols
like sorbitol. These carbs are found in a large number of fruits, vegetables,
legumes, grains and other foods. The actual diet is highly tailored to each
individual and should be devised in consultation with a dietician. It starts
with a strict elimination diet followed by slowly introducing food types into
the diet to test them out.
Interestingly,
this may solve a mystery that has hovered around allergy medicine for years –
why some folk claim to be intolerant of gluten even though they don’t have
coeliac disease. Wheat and rye products contain fructans, one of the FODMAPs
carbohydrates.
At first
blush FODMAPs looks similar to the anti-Candida diet. In fact it’s anything
but. You can apparently eat sucrose – white sugar – on FODMAPs, an absolute
no-no for low blood sugar and Candida. Traditional sour dough is okay on
FODMAPs too as long as the grain is allowed, while any sort of fermentation is
out in the Candida diet. And hard cheeses are better than soft cheeses on FODMAPs
because the former contain less lactose – the only allowed cheese in the
Candida diet is cottage.
FODMAPs also
contradicts the Failsafe diet with its list of allowed vegetables
– there is some overlap but also many differences between it and the list of low-salicylate
vegetables.
Confusing huh?
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